DEFINING GRIEF IN CHILDHOOD: TEST-RETEST RELIABILITY OF THE W.T. GRANT CONSORTIUM GRIEF INVENTORY

Linda N. Freeman, M. D.

Prudence Fisher, M.S.W.

Robert Abramovitz, M.D.

Despite evidence which suggests that loss in childhood or adolescence can result in disruptive and enduring symptoms after the death (Brown & Harris, 1978), there is little information about the grief process and grief recovery in bereaved inner city children. Information about developmental and gender differences in the grief process which lead to children's vulnerability or resilience to subsequent problem behavior is needed to determine optimal interventions with children suffering the sudden loss of a significant other. Social work practitioners on the front line receiving the casualties of the violence and AIDS epidemics have an important role to play in developing understanding of the youthful grief process, intervening in pathological grief, and prevention planning to reduce the risk of dangerous sequelae to losses due to violence and AIDS. This study is an attempt to develop one of the important tools necessary to study the phenomenon of childhood and adolescent grief.

The study of child and adolescent bereavement has been hampered by the lack of clinically useful standardized instruments to measure children's grief reactions. After extensive search the investigators have only been able to identify two grief measures that are specific for children and adolescents, The Hogan Sibling Inventory of Bereavement (1990) and the W.T. Grant Consortium Grief Inventory (1994). Some adolescent bereavement studies have used an adult measure of grief, the Texas Inventory of Grief (Brent, 1993; Faschingbauer et al., 1987), but this measure does not tap many of the domains of the bereavement experience that are of clinical interest in younger children and adolescents. In addition, researchers who study bereavement due to sudden unexpected loss in adults (E. K. Rynearson, personal communication, October 19, 1994) who have used the Texas Inventory have found it is not useful in discriminating subjects who are experiencing pathological grief from those who have uncomplicated bereavement. This is because the measure is not comprehensive enough to identify intrusive recollections of the lost person, a symptom that seems to differentiate the two groups.

The Hogan Sibling Inventory of Bereavement was designed for use with young adolescents who have lost a sibling, but it is used for young people whose siblings' deaths were expected after a long illness. It has not been used in inner city populations of children or with children who suffer sudden and/or unexpected losses. In addition, the measure has not been widely used.

The W.T. Grant Consortium Inventory of Grief (Clark et al.,1994) shows promise of being a comprehensive bereavement measure that would be appropriate for different childhood and adolescent study populations. It was developed in 1990 by a consortium of researchers who were interested in loss in childhood including Madelyn Gould, Ph.D., Robert Pynoos, M.D., David Clark, Ph.D., David Brent, M.D. and David Balk, Ph.D. Members of the consortium each added items to the scale that they thought represented important domains of grieving among children and adolescents. A factor analysis was performed which identified four factors. Six reliability tapes were rated by an average of 8 raters per tape. The factor analysis was performed on 48 response sets of 142 questionnaire items each. Items which showed no or inadequate variance were removed. A four-factor solution with factors of Avoidance, Identification, Affective Compensation, and Anticipated Neediness was recommended but no further reliability or validity studies have been done on this measure.

The significance of the current study lies in the major public health and social work practice concern about children's exposure to untimely death and the loss of significant others to violence and AIDS. Unfortunately, these losses are becoming more common, particularly in inner city areas. Because grief is considered to be a normal phenomenon, few social workers become involved in understanding or intervening in the grief process. But, children who have lost significant others due violence can have responses similar to those who are direct victims or witnesses to violence(Freeman, et al., 1996). These symptoms can disrupt the child's functioning and influence his future development (Pynoos & Nader, 1990). There can be long-term consequences on their ability to regulate aggression and their propensity toward violence or victimization. In addition, sudden unexpected loss is associated with the highest risk of persistent grief (Pynoos & Nader, 1990). Reminiscing about the deceased, a necessary part of grief resolution, can be aborted because the child cannot think about the deceased without recalling mutilation or violence.

The purpose of this study is to examine the test-retest reliability of the W. T. Grant Consortium Grief Inventory and to compare it with the Texas Inventory of Grief (a measure that is commonly used in adult and in some adolescent bereavement studies). If the W.T. Grant inventory is found to have acceptable reliability, it will be used to evaluate the practice outcome of bereavement groups. Further, a clearer description of grief in childhood, obtained by using this instrument, will contribute to the definition of grief and the construct called complicated grief in childhood. If it is found to be unacceptable, further modifications will be made so that the authors can develop an acceptable instrument to measure grief among children and adolescents. The correlation of the W.T. Grant inventory and the Texas Inventory of Grief would allow workers who use the Texas Inventory to compare the data

THE CURRENT STUDY: The William T. Grant Grief Inventory Test-Retest Study

The aims of this study are to demonstrate the test-retest reliability of the W.T. Grant Grief Inventory when used by raters examining inner city children and adolescents and to determine its correlation with a standard bereavement scale used in adult populations, the Texas Inventory of Grief.

Questions for the current study include: Is the W.T. Grant Inventory reliable (correlation of 0.8 or above) when administered twice over the course of one week? Can the W.T. Grant Inventory distinguish between children and adolescents who are bereaved and who are not bereaved? What is the correlation between the W.T. Grant Inventory and the Texas Inventory of Grief?

The study is being conducted in collaboration among the New York State Psychiatric Institute and the Center for the Study of Social Work Practice. Bereaved subjects are 9-18 years old inner city boys and girls who have been bereaved by the loss of a significant other within the two years prior to the interview. The subjects of the Co-PI's studies are within this age group and the vocabulary in the Inventory seems appropriate for this age group. The up-to-2 year interval between loss and interview was selected because a loss occurring within 2 years is likely be actively grieved but the subjects will be a different stages of grief. This will increase variability in our responses. Bereaved subjects are being recruited through the Jewish Boards of Family and Children's Services. Subjects who incurred losses due to any type of death will be included to maximize variability in response. Announcements of the study and subject inclusion criteria will be sent to administrators at JBFCS sites. Consecutive referrals of any children who meet the criteria will be accepted regardless of their treatment status, i.e., whether they are referred at initial intake, or while they are in treatment for bereavement related or other difficulties. Significant others who have died will be parents or primary caretaking parent figures, siblings (full, half-, or step siblings) or other relatives with whom the subject has had at least biweekly contact over the year prior to their death.

Non-bereaved subjects are 9-18 year old inner city boys and girls who have not suffered the loss of a significant other as defined above. They are recruited from a Boys and Girls Club in Bronx, New York. Twenty subjects between the ages of 9 and 18 years will be recruited. Ten of the subjects will be bereaved and ten will be non-bereaved. After signing consent, subjects will be given the W.T.Grant Inventory individually by a research assistant. The assistant will read the 67 item Grief Inventory to the subjects and they will code their response on their individual answer sheets. At the first interview only, the 23 item Texas Inventory will also be read to the subjects and coded on their individual answer sheets. The assistant will audiotape the session so that intra-rater reliability may be examined. The sessions will be timed but are expected to last approximately one to one and a half hours each. The assistant will review the answer sheets for completeness before the subject leaves. Any incomplete answers will be re-asked and completed. One week, (seven days) after the completion of the Inventory, the same subjects will be given the W.T. Grant Inventory by the same interviewer. The procedure outlined above will again be followed. The non bereaved subjects will be asked the same questions which appear in the inventories, but about a living significant other. Questions that refer to the time period since a death will be rephrased to "in the past month, how often have you...".

Responses will be analyzed to determine test-retest reliability of the W.T. Grant Inventory and correlation between the responses on the W.T. Grant Inventory and the Texas Inventory of Grief. We will obtain simple sums of the scores of four factors which have been identified i.e., Avoidance, Identification, Affective Compensation, and Anticipated Neediness and a total score.

The test-retest paradigm will be a one-way random effects analysis of variance which will estimate the components of variance due to subject and to error variance. An inter-class coefficient, i.e., coefficient of reliability will be calculated from these components of variance (Bartko, 1966) for the four subscale scores and for the total score. Correlations between the two inventories will be determined with the Pearson correlation coefficient.

At this writing, data have been collected from ten non-bereaved subjects and from five bereaved subjects. After data are collected from 5 more bereaved subjects, the analysis will be performed to determine the reliability of the measure. If it proves reliable, we three investigators who are currently studying different aspects of bereavement in children and adolescents i.e., the grief of children who have lost significant others to homicide (Freeman), suicide (Fisher), and AIDS (Abramovitz) will utilize it in our respective studies of treatment outcome, identification of pathological grief in childhood, and the description of grief recovery. It is important for us and for the field of childhood bereavement to have a reliable valid measure of grief that is appropriate for inner city children and adolescents.

References

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Brent, D., Perper, J., Moritz, G, et al. (1993). Psychiatric sequelae of the loss of an adolescent peer to suicide. American Journal of Child and Adolescent Psychiatry, 32, 509-517.

Clark, D.C., Pynoos, R.S., & Goebel, A.E. (1994). Mechanisms and processes of adolescent bereavement. In R.J. Haggerty, L.R. Sherrod, N. Garmezy, & M. Rutter (Eds.), Stress, risk and resilence (pp. 100-146). New York:

Faschingbauer, T.R., Zisook, S., & DeVaul, R. (1989). The Texas revised inventory of grief. In S. Zisook (Ed.) Biopsychosocial aspects of bereavement. Washington, D.C. : American Psychiatric Association.

Freeman, L.N., Shaffer, D., & Smith, H. I. (1996). Neglected victims of homicide: The needs of young siblings of murder victims. American Journal of Orthopsychiatry, 66, 337-345.

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Pynoos, R.S., & Nader, K. (1990). Children's exposure to violence and truamatic death. Psychiatric Annals 20, 334-344.