DMD Project at Columbia University
Duchenne Muscular Dystrophy Project at Columbia University
We are a team dedicated to improving the quality of life for children
with DMD and BMD. Our goals are to better understand the sorts of
cognitive difficulties that children with DMD and BMD may be at
risk for, and to try and offer suggestions on how best to ameliorate
any learning difficulties they may have. The study is run by Veronica
J. Hinton, Ph.D. a developmental neuropsychologist and Associate
Professor at Columbia University. The study is coordinated by Robert
Fee, who oversees all aspects of the work and the evaluations.
Together we work with different pediatric neurologists at numerous medical centers.
The study has been supported both by the National Institute for
Child Health and Development and the National Institute for
Neurological Disease and Stroke of NIH and the Muscular Dystrophy
Association. Thanks to them, and mainly thanks to the help of all of our
research participants, we have made tremendous gains in understanding
the learning profile of children with DMD.
We all want to improve the quality of the lives of these boys. This work hopes to untangle the day-to-day frustrations many feel at school and to help them feel better about themselves. Together, we will be able to do that.