DMD Project at Columbia University

Duchenne Muscular Dystrophy Project at Columbia University

We are a team dedicated to improving the quality of life for children

with DMD and BMD.  Our goals are to better  understand the sorts of

cognitive difficulties that children with DMD and BMD may be at

risk for, and to try and offer suggestions on how best to ameliorate

any learning difficulties they may have.  The study is run by Veronica

J. Hinton, Ph.D. a  developmental neuropsychologist and Associate

Professor at Columbia University.  The study is coordinated by Robert

Fee, who oversees all aspects of the work and the evaluations. 

Together we work with different pediatric neurologists at numerous medical centers. 

     The study has been supported both by the National Institute for

Child Health and Development and the National Institute for

Neurological Disease and Stroke  of NIH and the Muscular Dystrophy

Association.  Thanks to them, and mainly thanks to the help of all of our

research participants, we have made tremendous gains in understanding

the learning profile of children with DMD.

 

 

Our Hope

     We all want to improve the quality of the lives of these boys.  This work hopes to untangle the day-to-day frustrations many feel at school and to help them feel better about themselves.   Together, we will be able to do that.

 

Sergievsky Center