Patient Education
Challenges
•
Lack of
–
information about uses of
tissue
–
importance of tissue to
research
–
understanding of the
process of tissue
collection, storage and
quality controls
•
Concern about
–
Confidentiality/use of
identifiers
–
Who owns the tissue
Solutions
•
Develop materials for
patients, advocates and
healthcare professionals
–
RAN is developing
patient/advocate
educational tools on the
use of tissue in research