Adrienne Pichon PhD, MPH, MPhil, MA

New York, NY · [email protected]

Human-centered AI at the intersection of biomedical informatics and human-computer interactions. Researches informatics tools and solutions, including personal informatics apps and visualizations, leveraging patient-generated data and user-centered design to empower patients in shared-decision making and self-management of complex chronic conditions.


Publications

Select publications included below, see Google Scholar or CV for full list of work.

Peer-Reviewed Publications

Pichon A, Blumberg J, Mamykina L, Elhadad N. The Voice of Endo: Leveraging Speech for an Intelligent System That Can Forecast Illness Flare-ups. CHI Conf 2025. 2025. https://doi.org/10.1145/3706598.3714040 pdf

Pichon A, Urteaga I, Mamykina L, and Elhadad N. Informing the Design of Individualized Self-management Regimens from the Human, Data, and Machine Learning Perspectives. ACM Transactions on Computer-Human Interactions (TOCHI). 2025. https://doi.org/10.1145/3717063 pdf

Bear Don’t Walk OJ IV, Pichon A, Reyes Nieva H, Sun T, Altosaar J, Joseph J, Kinberg S, Richter LR, Crusco S, Kulas K, Ahmed SA, Snyder D, Rahbari A, Ranard BL, Juneja P, Demner-Fushman D, Elhadad N. C-REACT, Two Sets of Gold-standard Annotations for Race and Ethnicity in Clinical Notes from MIMIC-III. Scientific Data. 2024. pdf
Dataset available at: https://doi.org/10.13026/z8tq-v658.

Bear Don’t Walk OJ IV, Pichon A, Reyes Nieva H, Sun T, Altosaar J, Karthik Natarajan, Perotte A, Tarczy-Hornoch P, Demner-Fushman D, Elhadad N. Auditing Learned Associations in Deep Learning Approaches to Extract Race and Ethnicity from Clinical Text. AMIA Annual Symposium. 2023. pdf

Hussein R, Pichon A, Oldenburg J, Sareban M, Niebauer J. Can Patient Contributed Data (PCD) leverage connected health technology for cardiac rehabilitation in Austria? (Conference, Full-paper). In: Medical Informatics Europe 2023 (MIE2023). 2023 May 22-25; Goteborg, Sweden. https://doi.org/10.3233/SHTI230054 pdf

Hussein R, Griffin AC, Pichon A, Oldenburg J. A Guiding Framework for Creating a Comprehensive Strategy for MHealth Data Sharing, Privacy, and Governance in Low- and Middle-Income Countries (LMICs). JAMIA. 2022. https://doi.org/10.1093/jamia/ocac198 pdf

Pichon A, Jackman K, Winkler I, Bobel C, Elhadad N. The Messiness of the Menstruator and their Needs: Characterizing the Personas and Functionalities of Menstrual Trackers. JAMIA Special Issue Informatics for Sex- and Gender-Related Health: Understanding the problems, developing new methods, and designing new solutions. 2021. https://doi.org/10.1093/jamia/ocab212 pdf

Pichon A*, Idnay B , Marder K, Schnall R, Weng C. Cognitive Function Characterization Using Electronic Health Records Notes. AMIA Annual Symposium. 2021. pdf
* Contributed equally, co-first authors

Beauchemin M, Weng C, Sung L, Pichon A, Abbott M, Hershman DL, Schnall R. Data Quality of Chemotherapy-Induced Nausea and Vomiting Documentation. Applied Clinical Informatics. 2021;12(2): 320–328. https://doi.org/10.1055/s-0041-1728698 pdf

Pichon A, Schiffer K, Horan E, Massey B, Bakken S, Mamykina L, Elhadad N. Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic Disease. Proc. ACM HCI. 2020;4(CSCW3): Article 261. https://doi.org/10.1145/3434170 pdf




Ensari I, Pichon A, Lipsky-Gorman S, Bakken S, Elhadad, N. Augmenting the Clinical Data Sources for Enigmatic Diseases: A Cross-Sectional Study of Self-Tracking Data and Clinical Documentation in Endometriosis. Applied Clinical Informatics. 2020;11(5), 769–784. https://doi.org/10.1055/s-0040-1718755 pdf

Cho H, Powell D, Pichon A, Kuhns L, Garofalo R, Schnall R. Eye-tracking retrospective think-aloud as a novel approach for a usability evaluation. International Journal of Medical Informatics. 2019;129: 366-373. pdf

Cho H, Powell D, Pichon A, Thai J, Bruce J, Kuhns L, Garofalo R, Schnall R. A mobile health intervention for HIV prevention among racially and ethnically diverse young men: usability evaluation. JMIR Mhealth Uhealth. 2018;6(9):e11450. pdf

Stonbraker S, Cho H, Hermosi G, Pichon A, Schnall R. Usability testing of a mHealth app to support self-management of HIV-associated non-AIDS related symptoms. International Conference on Nursing Informatics; 2018 Jun 6-8; Guadalajara, Mexico. Studies in Health Technology and Informatics; 2018;250:106-110. pdf

Schnall R, Cho H, Mangone A, Pichon A, Jia H. Mobile health technology for improving symptom management in low-income persons living with HIV. AIDS and Behavior. 2018;22(10): 3373-3383. pdf

Schnall R, Cho H, Mangone A, Pichon A. A mobile video information provider (VIP) for dissemination of evidence from patient-centered outcomes research for improving symptom management. European Federation of Medical Informatics, Special Topic Conference; 2017 Oct 22-23; Tel Aviv, Israel. Studies in Health Technology and Informatics; 2017;244:80. pdf

Presentations and Workshops

Menopause and AI. Organizer and Facilitator. NSF Workshop, 2024, led by Elhadad N.

Pichon A, Elhadad N. Learning Interpretable, Temporal Health Status Phenotypes from Self-Tracked Patient Data. Podium abstract presented at: AMIA 2024 symposium.

Kashyap A, Allsman C, Campbell E, Desai P, Volpe S, Massey B, Bakken S, Bear Don’t Walk O, Pichon A. A Broad Perspective on Justice-Oriented Research in Biomedical Informatics. Podium abstract presented at: AMIA 2024 symposium.

Pichon A, Volpe S, Kashyap A, Desai P, Anand T, Campbell E, Schiffer-Kane K, Diamond C, Massey B, Allsman C, Newbury A, Richter L, Bright T, Bakken S, Bear Don’t Walk O. Synthesizing Gaps and Priorities for a Justice Informatics Research Agenda. Presented at: AMIA 2023 symposium.

Pichon A, Blumberg J, Elhadad N. Defining, Characterizing, and Predicting Endometriosis Flare-Ups through Machine Learning with Patient-Generated Data. Presented at: 15th World Congress on Endometriosis; 2023; Edinburgh, Scotland.

Bear Don’t Walk OJ, Pichon A, Volpe S, Grossman Liu L, Desai P, Anand T, Richter L, Schiffer K, Diamond C, Massey B, Bakken S. A Workshop to Build a Research Agenda for Justice Informatics. Workshop held at: AMIA Annual Symposium; 2022; Washington, DC.

Other Publications

American Medical Informatics Association. Inclusive Language and Context Style Guidelines. Available at https://amia.org/InclusiveLanguage. 2023. Contributor. pdf

Patient Empowerment Workgroup: Moen MD, Oldenburg J, Pichon A, et al. HL7 Informative Document: Patient Contributed Data, Edition 1. 2023. Available at: https://www.hl7.org/implement/standards/product_brief.cfm?product_id=638 pdf

Messeri P, Ball A. Medication adherence support services. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2018. CHAIN Report #2016-1. pdf

Messeri P, Zabel T, Ball A. Predictors of long-term survival for persons living with HIV: a literature review and empirical study of the New York City CHAIN cohort. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2018. CHAIN Report #2016-2. pdf

Messeri P, Ball A, Sharma N. Prevalence of non-HIV comorbid health conditions in the CHAIN cohort. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2016. CHAIN Report #2013-6. pdf

Messeri P, Ball A. Hepatitis C lifetime prevalence and treatment. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2016. CHAIN Briefing #2015-3. pdf

Messeri P, Ball A. Place of residence and location of services. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2015. CHAIN Briefing #2015-1. pdf

Frazer S, Howe E, Lelutiu-Weinberger C, Ball A. Feasibility study for LGBT SAINT: serving lesbian, gay, bisexual, and transgender adolescents in need of treatment. New York, NY: Strength in Numbers Consulting Group; 2015.


Education

Department of Biomedical Informatics, Columbia University

Postdoc
Lab: Dr. Lena Mamykina
March 2025 - Current

Department of Biomedical Informatics, Columbia University

Doctor of Philosophy (PhD)
Dissertation: Supporting the Work of Patients and Providers in Complex Chronic Illness pdf
Lab: Dr. Noemie Elhadad
September 2019 - February 2025

Mailman School of Public Health, Columbia University

Master of Public Health (MPH)
Department of Sociomedical Sciences | Sexuality, Sexual, and Reproductive Health Certificate
September 2013 - May 2015

University of Miami

Bachelor of Science in Education (BSEd), Exercise Physiology
August 2009 - May 2013

Semester at Sea

Study Abroad
August 2011 - December 2011

Experience

Department of Biomedical Informatics, Columbia University

Research Coordinator
Lab: Dr. Noemie Elhadad

Data-powered women's health

September 2018 - September 2019

School of Nursing, Columbia University

Project Manager | Research Coordinator
Lab: Dr. Rebecca Schnall
February 2017 - September 2018

Mailman School of Public Health, Columbia University

Junior Programmer
Lab: Dr. Peter Messeri
December 2014 - February 2017

Strength in Numbers Consulting Group

Research and Program Development Assistant
February 2014 - February 2017


Tema General Hospital, Tema, Ghana

Research Assistant
May 2012 - July 2012

Last Updated 4/2025 by Adrienne Pichon