Adrienne Pichon MPH, MPhil, MA

New York, NY · [email protected]

Researches informatics tools and solutions, including personal informatics apps and visualizations, leveraging patient-generated data and user-centered design to empower patients in shared-decision making and self-management of complex chronic conditions.


Publications

Peer-Reviewed Publications

Bear Don’t Walk OJ, Pichon A, Reyes Nieva H, Sun T, Altosaar J, Karthik Natarajan, Perotte A, Tarczy-Hornoch P, Demner-Fushman D, Elhadad N. Auditing Learned Associations in Deep Learning Approaches to Extract Race and Ethnicity from Clinical Text. AMIA Annual Symposium. 2023.

Bear Don’t Walk OJ, Pichon A, Reyes Nieva H, Sun T, Altosaar J, Joseph J, Kinberg S, Richter L, Crusco S, Kulas K, Ahmed S, Snyder D, Rahbari A, Ranard B, Juneja P, Demner-Fushman D, Elhadad N. C-REACT: Contextualized Race and Ethnicity Annotations for Clinical Text. PhysioNet; 2023.

Hussein R, Griffin AC, Pichon A, Oldenburg J. A Guiding Framework for Creating a Comprehensive Strategy for MHealth Data Sharing, Privacy, and Governance in Low- and Middle-Income Countries (LMICs). JAMIA. https://doi.org/10.1093/jamia/ocac198 pdf

Pichon A, Jackman K, Winkler I, Bobel C, Elhadad N. The Messiness of the Menstruator and their Needs: Characterizing the Personas and Functionalities of Menstrual Trackers. JAMIA Special Issue Informatics for Sex- and Gender-Related Health: Understanding the problems, developing new methods, and designing new solutions. 2021. https://doi.org/10.1093/jamia/ocab212 pdf

Pichon A*, Idnay B , Marder K, Schnall R, Weng C. Cognitive Function Characterization Using Electronic Health Records Notes. AMIA Annual Symposium. 2021. pdf
* Contributed equally, co-first authors

Beauchemin M, Weng C, Sung L, Pichon A, Abbott M, Hershman DL, Schnall R. Data Quality of Chemotherapy-Induced Nausea and Vomiting Documentation. Applied Clinical Informatics. 2021;12(2): 320–328. pdf

Pichon A, Schiffer K, Horan E, Massey B, Bakken S, Mamykina L, Elhadad N. Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic Disease. Proc. ACM HCI. 2020;4(CSCW3): Article 261. pdf




Ensari I, Pichon A, Lipsky-Gorman S, Bakken S, Elhadad, N. Augmenting the Clinical Data Sources for Enigmatic Diseases: A Cross-Sectional Study of Self-Tracking Data and Clinical Documentation in Endometriosis. Applied Clinical Informatics. 2020;11(5), 769–784. pdf

Cho H, Powell D, Pichon A, Kuhns L, Garofalo R, Schnall R. Eye-tracking retrospective think-aloud as a novel approach for a usability evaluation. International Journal of Medical Informatics. 2019;129: 366-373. pdf

Cho H, Powell D, Pichon A, Thai J, Bruce J, Kuhns L, Garofalo R, Schnall R. A mobile health intervention for HIV prevention among racially and ethnically diverse young men: usability evaluation. JMIR Mhealth Uhealth. 2018;6(9):e11450. pdf

Schnall R, Cho H, Mangone A, Pichon A, Jia H. Mobile health technology for improving symptom management in low-income persons living with HIV. AIDS and Behavior. 2018;22(10): 3373-3383. pdf

Manuscripts Under Review

Pichon A, Urteaga I, Mamykina L, Elhadad N. Informing the Design of Individualized Self-management Regimens from the Human, Data, and Algorithmic Perspectives. Revising with reviewer comments for new submission.

Peer-Reviewed Presentations and Workshops

Pichon A, Volpe S, Kashyap A, Desai P, Anand T, Campbell E, Schiffer-Kane K, Diamond C, Massey B, Allsman C, Newbury A, Richter L, Bright T, Bakken S, Bear Don’t Walk O. Synthesizing Gaps and Priorities for a Justice Informatics Research Agenda. Presented at: AMIA 2023 symposium.

Pichon A, Blumberg J, Elhadad N. Defining, Characterizing, and Predicting Endometriosis Flare-Ups through Machine Learning with Patient-Generated Data. Presented at: 15th World Congress on Endometriosis; 2023; Edinburgh, Scotland.

Pichon A, Urteaga I, Mamykina L, Elhadad N. Informing the Design of Individualized Self-management Regimens from the Human, Data, and Algorithmic Perspectives. Presented at: AMIA Annual Symposium; 2022; Washington, DC.

Bear Don’t Walk OJ, Pichon A, Volpe S, Grossman Liu L, Desai P, Anand T, Richter L, Schiffer K, Diamond C, Massey B, Bakken S. A Workshop to Build a Research Agenda for Justice Informatics. Workshop held at: AMIA Annual Symposium; 2022; Washington, DC.

Pichon A, Houterloot M, Schiffer K, Horan E, Elhadad N. Get on the same page: negotiating and aligning knowledge and expectations between patients and providers through self-tracking artifacts. Presented at: AMIA Annual Symposium; 2019; Washington DC.

Peer Reviewed Proceedings Papers

Hussein R, Pichon A, Oldenburg J, Sareban M, Niebauer J. Can Patient Contributed Data (PCD) leverage connected health technology for cardiac rehabilitation in Austria? (Conference, Full-paper). In: Medical Informatics Europe 2023 (MIE2023). 2023 May 22-25; Goteborg, Sweden.

Stonbraker S, Cho H, Hermosi G, Pichon A, Schnall R. Usability testing of a mHealth app to support self-management of HIV-associated non-AIDS related symptoms. International Conference on Nursing Informatics; 2018 Jun 6-8; Guadalajara, Mexico. Studies in Health Technology and Informatics; 2018;250:106-110. pdf

Schnall R, Cho H, Mangone A, Pichon A. A mobile video information provider (VIP) for dissemination of evidence from patient-centered outcomes research for improving symptom management. European Federation of Medical Informatics, Special Topic Conference; 2017 Oct 22-23; Tel Aviv, Israel. Studies in Health Technology and Informatics; 2017;244:80. pdf

Peer-Reviewed Poster Presentations

Blumberg J, Pichon A, Elhadad N. Defining, Characterizing, and Predicting Endometriosis Flare-Ups through Machine Learning with Patient-Generated Data. Poster session presented at: AMIA 2023 Symposium.

Schnall R, Pichon A, Scherr T. In-depth interviews to understand the feasibility of using the mLab app for promotion of HIV-self testing in young men. Poster session presented at: Creating the healthiest nation: health equity now. APHA Annual Meeting; 2018 Nov 10-14; San Diego, CA.

Cho H, Powell D, Pichon A, Bruce J, Kuhns L, Schnall R. Usability evaluation of a mobile intervention (MyPEEPS mobile) for HIV prevention among young men. Poster session presented at: Data, technology, and innovation for better health. AMIA Annual Symposium; 2018 Nov 3-7; San Francisco, CA.

Schnall R, Pichon A, Scherr T. Mixed methods feasibility study of the use of the mLab app for promoting the uptake of HIV testing. Poster session presented at: Data, technology, and innovation for better health. AMIA Annual Symposium; 2018 Nov 3-7; San Francisco, CA.

Schnall R, Pichon A, Scherr T. Feasibility of using mobile phone imaging to interpret HIV rapid self-testing results among young high-risk men. Poster session presented at: Connecting systems and people to improve population health. Public Health Informatics Conference; 2018 Aug 20-23; Atlanta, GA.

Schnall R, Cho H, Pichon A, Jia H. Mobile health technology for improving symptom management in low-income persons living with HIV. Poster session presented at: AMIA Clinical Informatics Conference; 2018 May 8-10; Scottsdale, AZ.

Schnall, R, Cho, H, Mangone A, Pichon A, Jia H. Mobile health technology for improving symptom management in low income persons living with HIV. Poster session presented at: Academy Health Conference on the Science of Dissemination and Implementation in Health; 2017 Dec 4-6; Arlington, VA.

Non-Peer-Reviewed Publications

Patient Empowerment Workgroup: Moen MD, Oldenburg J, Pichon A, et al. HL7 Informative Document: Patient Contributed Data. 2022. White paper currently undergoing revision due to favorable balloting process within HL7.

Messeri P, Ball A. Medication adherence support services. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2018. CHAIN Report #2016-1. pdf

Messeri P, Zabel T, Ball A. Predictors of long-term survival for persons living with HIV: a literature review and empirical study of the New York City CHAIN cohort. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2018. CHAIN Report #2016-2. pdf

Messeri P, Ball A, Sharma N. Prevalence of non-HIV comorbid health conditions in the CHAIN cohort. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2016. CHAIN Report #2013-6. pdf

Messeri P, Ball A. Hepatitis C lifetime prevalence and treatment. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2016. CHAIN Briefing #2015-3. pdf

Messeri P, Ball A. Place of residence and location of services. New York, NY: Columbia University, New York Health and Human Services Planning Council; 2015. CHAIN Briefing #2015-1. pdf

Frazer S, Howe E, Lelutiu-Weinberger C, Ball A. Feasibility study for LGBT SAINT: serving lesbian, gay, bisexual, and transgender adolescents in need of treatment. New York, NY: Strength in Numbers Consulting Group; 2015.


Experience

Department of Biomedical Informatics, Columbia University

Research Coordinator
Lab: Dr. Noemie Elhadad

Data-powered women's health

September 2018 - September 2019

School of Nursing, Columbia University

Project Manager | Research Coordinator
Lab: Dr. Rebecca Schnall
February 2017 - September 2018

Mailman School of Public Health, Columbia University

Junior Programmer
Lab: Dr. Peter Messeri
December 2014 - February 2017

Strength in Numbers Consulting Group

Research and Program Development Assistant
February 2014 - February 2017


Tema General Hospital, Tema, Ghana

Research Assistant
May 2012 - July 2012

Education

Department of Biomedical Informatics, Columbia University

Doctor of Philosophy (PhD), Candidate
Lab: Dr. Noemie Elhadad
September 2019 - Current

Mailman School of Public Health, Columbia University

Master of Public Health (MPH)
Department of Sociomedical Sciences | Sexuality, Sexual, and Reproductive Health Certificate
September 2013 - May 2015

University of Miami

Bachelor of Science in Education (BSEd), Exercise Physiology
August 2009 - May 2013

Semester at Sea

Study Abroad
August 2011 - December 2011

Skills & Interests

PROGRAMMING
  • R | Python | SQL | STATA | C++ | JavaScript | jQuery | Perl | HTML | CSS

SOFTWARE
  • MySQL Workbench | MS Access | STATA | Qualtrics | REDCap | Lighthouse Studios-CAPI | Dedoose

DATA
  • Database design and management
  • Statistical programming
  • Data management & analysis
  • Survey design
  • Data visualization

RESEARCH METHODS
  • User-centered design
  • Consumer/clinical informatics app development & evaluation
  • Quantitative research methods: surveys, texts, blood serum, self-tracking, fitness, smart technology, app logs, metadata
  • Qualitative research methods: interviews, focus groups, usability

TOPICS & COMMUNITIES OF INTEREST
  • mHealth & Informatics
  • Human-Computer Interaction
  • Sexuality, Sexual, & Reproductive Health
  • Women's Health
  • Social Determinants of Health
  • Social, Economic, & Racial Justice
  • Chronic Illness, Self Management
  • Quality of Life

Last Updated 9/2023 by Adrienne Pichon