Friday, May 19, 2006
Welcome & Introduction
Ruth L. Fischbach, Ph.D., M.P.E.
- Video | Slides | Bio Sketch
Keynote Address: Genetics Policy: Progress or Paralysis
Kathy L. Hudson, Ph.D. - Video | Slides | Bio Sketch
Panel I - Basic Issues: What You Need to Know
Moderator: Ruth L. Fischbach, Ph.D., M.P.E.
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Key Issues in Informed Consent in Genetic Research
David H. Strauss, M.D. - Video | Slides | Bio Sketch -
Genetic Privacy, Stigma, and Discrimination
Lawrence Amsel, M.D., M.P.H. - Video | Slides | Bio Sketch -
Issues in Family/Pedigree Studies
Ruth Ottman, Ph.D. - Video | Slides | Bio Sketch -
Panel Discussion - Video
Panel II -
Genetic Research:
Considerations with
Special Populations
Moderator: John D. Loike, Ph.D. - Bio Sketch
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Genetic Research in Communities and Across Cultures
Victor B. Penchaszadeh, M.D., M.Sc. - Video | Slides | Bio Sketch -
Genetic Research Involving Newborns, Children, and Adolescents
Wendy K. Chung, M.D., Ph.D. - Video | Slides | Bio Sketch -
Genetic Research in Mental Illness
Myrna Weissman, Ph.D. - Video | Slides | Bio Sketch
Morning Workshops
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Informed Consent in Genetic Research
Barron H. Lerner, M.D., Ph.D., David H. Strauss, M.D.
& Jennifer Williamson-Catania, M.S., C.G.C. -
Genetic Privacy, Stigma, and Discrimination
Lawrence Amsel, M.D., M.P.H. & Robert Klitzman, M.D. -
Genetic Research Involving Newborns, Children, and Adolescents
Mary Byrne, Ph.D., M.S., M.P.H., F.A.A.N.
& Wendy K. Chung, M.D., Ph.D. -
Genetic Databases, Registries, and the Use of Genetic Identifiers
Ronald Bayer, Ph.D. & Amy Fairchild, Ph.D., M.P.H. -
Genetic Testing and Population Identity:
Ethnic Groups & Other Special Populations
Karen S. Marder, M.D., M.P.H. & Ruby Senie, Ph.D. -
Is Race a Genetic Reality or a Social Construct?
Robert Fullilove, Ed.D.
Lunch and Special Presentation: Ethical and Legal Challenges in Researching Cancer Genetics
Kenneth Offit, M.D., M.P.H. - Bio Sketch
Panel III - Hot Spots in Ethics of Genetic Research: Genetics of Obesity, Genetic Testing in the Workplace, and Genetic Research on Alcohol and Drug Use
Moderator: Joyce Plaza, M.S., M.Be. - Bio Sketch
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Genetics of Obesity
Rudolph L. Leibel, M.D. - Video | Slides | Bio Sketch -
Genetic Testing in the Workplace
Thomas H. Murray, Ph.D. - Video | Slides | Bio Sketch -
Genetic Research on Alcohol and Drug Use:
From Abstention to Dependence
Deborah S. Hasin, Ph.D. - Video | Slides | Bio Sketch -
Panel Discussion - Video
Afternoon Workshops
-
Role of the IRB in Protecting Participants,
Families, and Communities
George Gasparis -
First, Do No Harm: Are There Boundaries of Genetic Research
Beyond Which We Should Not Go?
Ruth Ottman, Ph.D. -
Neurogenetic Challenges: Prevention of Harm and
Protection of the Vulnerable
Nancy Wexler, Ph.D. -
Genetic Research in Communities and Across Cultures
Victor B. Penchaszadeh, M.D., M.Sc.
& Gladys E. Maestre, M.D., Ph.D. -
What Should IRBs Consider When Reviewing a Protocol
in Which Race will be Identified?
Heather Butts, J.D., M.P.H., M.A.
& Ruth L. Fischbach, Ph.D., M.P.E. -
Genetic Enhancement
Robert Klitzman, M.D.
& Jennifer Williamson-Catania, M.S., C.G.C.
Saturday, May 20, 2006
KEYNOTE ADDRESS: Conducting Genetic Research Abroad
Zena Stein, M.D. - Video | Bio Sketch
Panel IV-
Issues in Genetics and Genomics of
Women's Health
Moderator: Ruth L. Fischbach, Ph.D., M.P.E.
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Genetics and Pregnancy Loss
Dorothy Warburton, Ph.D. - Video | Slides | Bio Sketch -
Gender Specific Differences in Heart Function
and Bone Metabolism
Marianne J. Legato, M.D. - Video | Slides | Bio Sketch -
Panel Discussion - Video
Panel V-
Issues in the Genetics of Behavioral and
Mental
Health Research
Moderator: Robert Klitzman, M.D. - Bio Sketch
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Genetics of Dementia
Scott A. Small, M.D. - Video | Slides | Bio Sketch -
Genetics of Autism as a Window into the Future
Gerald D. Fischbach, M.D. - Video | Slides | Bio Sketch -
Panel Discussion and Closing Remarks - Video