Friday, May 19, 2006

Welcome & Introduction

Ruth L. Fischbach, Ph.D., M.P.E.
- Video | Slides | Bio Sketch

Keynote Address: Genetics Policy: Progress or Paralysis

Kathy L. Hudson, Ph.D. - Video | Slides | Bio Sketch

Panel I - Basic Issues: What You Need to Know

Moderator: Ruth L. Fischbach, Ph.D., M.P.E.

Panel II - Genetic Research:
Considerations with Special Populations

Moderator: John D. Loike, Ph.D. - Bio Sketch

  • Genetic Research in Communities and Across Cultures
    Victor B. Penchaszadeh, M.D., M.Sc. - Video | Slides | Bio Sketch

  • Genetic Research Involving Newborns, Children, and Adolescents
    Wendy K. Chung, M.D., Ph.D. - Video | Slides | Bio Sketch

  • Genetic Research in Mental Illness
    Myrna Weissman, Ph.D. - Video | Slides | Bio Sketch

Morning Workshops

  1. Informed Consent in Genetic Research
    Barron H. Lerner, M.D., Ph.D., David H. Strauss, M.D.
    & Jennifer Williamson-Catania, M.S., C.G.C.

  2. Genetic Privacy, Stigma, and Discrimination
    Lawrence Amsel, M.D., M.P.H. & Robert Klitzman, M.D.

  3. Genetic Research Involving Newborns, Children, and Adolescents
    Mary Byrne, Ph.D., M.S., M.P.H., F.A.A.N.
    & Wendy K. Chung, M.D., Ph.D.

  4. Genetic Databases, Registries, and the Use of Genetic Identifiers
    Ronald Bayer, Ph.D. & Amy Fairchild, Ph.D., M.P.H.

  5. Genetic Testing and Population Identity:
    Ethnic Groups & Other Special Populations
    Karen S. Marder, M.D., M.P.H. & Ruby Senie, Ph.D.

  6. Is Race a Genetic Reality or a Social Construct?
    Robert Fullilove, Ed.D.

Lunch and Special Presentation: Ethical and Legal Challenges in Researching Cancer Genetics

Kenneth Offit, M.D., M.P.H. - Bio Sketch

Panel III - Hot Spots in Ethics of Genetic Research: Genetics of Obesity, Genetic Testing in the Workplace, and Genetic Research on Alcohol and Drug Use

Moderator: Joyce Plaza, M.S., M.Be. - Bio Sketch

Afternoon Workshops

  1. Role of the IRB in Protecting Participants,
    Families, and Communities
    George Gasparis

  2. First, Do No Harm: Are There Boundaries of Genetic Research
    Beyond Which We Should Not Go?
    Ruth Ottman, Ph.D.

  3. Neurogenetic Challenges: Prevention of Harm and
    Protection of the Vulnerable
    Nancy Wexler, Ph.D.

  4. Genetic Research in Communities and Across Cultures
    Victor B. Penchaszadeh, M.D., M.Sc.
    & Gladys E. Maestre, M.D., Ph.D.

  5. What Should IRBs Consider When Reviewing a Protocol
    in Which Race will be Identified?
    Heather Butts, J.D., M.P.H., M.A.
    & Ruth L. Fischbach, Ph.D., M.P.E.

  6. Genetic Enhancement
    Robert Klitzman, M.D.
    & Jennifer Williamson-Catania, M.S., C.G.C.

Saturday, May 20, 2006

KEYNOTE ADDRESS: Conducting Genetic Research Abroad

Zena Stein, M.D. - Video | Bio Sketch

Panel IV- Issues in Genetics and Genomics of
Women's Health

Moderator: Ruth L. Fischbach, Ph.D., M.P.E.

Panel V- Issues in the Genetics of Behavioral and
Mental Health Research

Moderator: Robert Klitzman, M.D. - Bio Sketch