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Program Overview:
The Infant Sickle Cell Program in Harlem and Northern Manhattan supports
families and communities affected by Sickle Cell Disease and Sickle
Trait. The communities we work in have a high occurrence of Sickle
Trait, ranging from approximately 1 in 10 births (~10%) in Harlem
and 1 in 20 (~5%) in Northern Manhattan. The Infant Sickle Cell Program,
established in 2008, is one of seventeen HRSA funded grantee sites
in the United States.
Mission/ Goals:
• Improve community awareness of Sickle Cell Disease and Sickle
Trait and increase community capacity for supporting families with
affected newborns and children.
• Partner with Primary Care Providers to improve pediatric follow-up
for newborn screening for Sickle Cell Disease and Sickle Trait.
• For children and families with Sickle Cell Disease, establish
continuous long-term comprehensive evidence-based prevention and treatment
of complications through their “medical home.”
Number of people served per year:
• Intensive: 700
• Not intensive: 2,000
Outcomes/Results:
• 50 health outreach workers and managers trained on Sickle
Cell and Newborn Screening at Community-Based Organizations (CBOs)
and the New York City Department of Health (NYCDOH) Home visiting
program.
• Trained 3 self-identified Sickle Cell champions at each of
the two CBOs who themselves have held trainings for CBO outreach worker
staff. In addition 200 teen youths educated on newborn screening and
Sickle Cell by CBO champions
• In 2009, 600 parents educated about newborn screening and
Sickle Cell through partner CBOs Alianza and Northern Manhattan Perinatal
Partnership’s home visiting programs.
• In 2009, provided educational materials to 1,500 parents on
newborn screening and Sickle Cell through NYC DOH Central Harlem home
visiting program
• Increased follow-up for newborns with Sickle Cell Trait at
NY-P
• 150 providers educated
• 160 NYC DOH School Nurses educated
• Provided 24/7 medical care to children with a sickling condition
at New York Presbyterian and, as of August 2009, at Harlem Hospital
too (approximately 210 children).
Partners:
• Alianza
• Division of Pediatric Hematology, Columbia University
• Harlem Health Promotion Center
• Harlem Hospital
• Newborn Home Visiting Program, NYC Department of Health
• NY-Presbyterian Hospital
• NY State Newborn Screening
• Northern Manhattan Perinatal Partnership
Contact Information:
Program Manager
Kelly Schunk, MPH
Tel. 917-846-3439
FAX 212-305-0807
Email: kes2144@columbia.edu
Faculty Lead/Medical Directors
Nancy S. Green, MD
Associate Professor of Clinical Pediatrics, Division of Hematology
Associate Director, Irving Institute for Clinical and Translational
Research
Email: nsg11@columbia.edu
Mary McCord, MD, MPH
Associate Clinical Professor - Pediatrics and Public Health
Tel. 212-305-0902
FAX 212-305-0807
Email: mm26@columbia.edu
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